We may collect the following types of information:

• Voluntarily submitted information, such as your name, email address, or personal story, through forms on our website (e.g., BEAT Score, Appointment Prep Tool, contact forms).

• Usage data, such as browser type, operating system, pages visited, and time spent on our site.

• Anonymous survey data and form responses that help us improve equity and accessibility in healthcare.

We use your information to:

• Respond to your inquiries and submissions

• Improve our tools, resources, and content

• Analyze trends in healthcare access, bias, and patient experience

• Share anonymized, aggregated insights for advocacy, education, or research

We do not sell or rent your personal information. We will never share identifying details without your explicit consent.

All data is stored securely using trusted third-party tools (e.g., Google Forms, Google Sheets, Squarespace, Zapier). We take appropriate technical and organizational measures to safeguard your information from unauthorized access or disclosure.

If you submit a form, your data may be temporarily stored and then automatically deleted, depending on the tool’s purpose. Aggregated, de-identified data may be used for research and reporting.

Our website may use basic cookies or tracking tools to understand general usage patterns and improve site functionality. You may adjust your browser settings to block cookies if you prefer.

You have the right to:

• Request access to the personal information we hold about you

• Ask us to correct, update, or delete your information

• Withdraw consent for use of your information at any time

To make a request, contact us at hello@joineve.org.

Our site may contain links to external resources or organizations. We are not responsible for the privacy practices of those third parties. Please review their policies separately.

We may update this policy periodically to reflect changes in our work, technology, or legal requirements. Updates will be posted with a revised “Last updated” date.